Community Service@Iceboxrivet2011: Bantulah Nur Addriana Damia (Cornelia de lange Syndrom with Pierre Robin Sequence) | Iceboxrivet

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Oct 10, 2011

Community Service@Iceboxrivet2011: Bantulah Nur Addriana Damia (Cornelia de lange Syndrom with Pierre Robin Sequence)


Disclaimer:
tujuan enrty ni buat membantu adik Mia ni dari segi perbelanjaan kos perubatan beliau sebagai 
pengidap Cornelia de Lange Syndrom dan Pierre Robinson Syndrome.
Diharap rakan - rakan blogger dapat sama - sama membantu.


Salam Guys..
untuk sekian kalinya Community Service @ Iceboxrivet 2011 berlansung...
kali ini aku titipkan untuk kalian kisah adik Nur Addriana Damia bt Abdul Aziz.

  • Berumur 1 tahun 7 bulan.(pada bulan terkini oct 2011)
  • mengalami masalah sumbing lelangit yang menyebabkan kesukaran untuk makan dan minum dengan sempurna. (sejak bayi perlu didudukkan pada riba atau menegak kerana gagal menghidap menyedut susu/bubur.kalau baring,boleh tersedak dan tersumbat pernafasan,pernafasan berbunyi seolah - olah kahak terkumpul)
  • penghidap sembelit yang teruk
  • lazy eye ( due to Pierre Robinson Syndrom)
  • kaki sebelah berbeza 3cm.
  • terdapat cecair pada belakang gegendang telinga yang ditemui sewaktu bayi lagi dimana adik Mia gagal memberi respond terhadap bunyi semasa ujian ABR.
  • sehingga hari ini,hanya boleh minum susu atau makan bubur sahaja atau bahan makanan berbentuk cecair sahaja kerana sumbing lelangit.
  •  perkembangan dan pertumbuhan yang terbantut : gross motor dan fine motor adik Mia serupa seperti bayi yang berusia 7 bulan.
  • baru berupaya untuk duduk pada usia sekarang.
  • pernah mengalami jangkitan paru - paru semasa berusia 1 hingga 7 bulan  dan 4 kali dimasukkan  wad semasa itu.

Plan Sugery at HKL:
  • Bilateral Myringotomy  + T - tube insertion (24/10/2011)
Pre Op Diagnosis:
  • Bilateral Middle Ear Effesion

Ibu Mia sekarang berulang alik  ke HKL sekurang-kurangnya 2-3 kali seminggu untuk menghantar Mia bagi setiap sesi rawatan dan terapi. Ibu Mia juga pernah bercuti selama 6 bulan tanpa gaji demi menjaga Mia.Ditambah pula jarak perjalanan sehari dari Hulu Langat ke HKL untuk rawatan dan ke tempat kerja di Gombak adalah menyukarkan.

Sebarang Sumbangan Boleh Disalurkan ke:
Maybank Nur Huda Md. Rosly 
1640 8979 1180


email: lurve_83@yahoo.com

3 comments:

mama rifQy said...

Ya allah kesiannye..berat dugaan si ibu

kakyong said...

Ayu,
mak budak ni xde FB ke blog ke??

teratai said...

berat mata memandang, berat lagi bahu yg memikul. Semoga ibu bapa adik mia ini tabah dgn dugaan ini..

Kambing Golek Aqiqah/Satay/Catering

Kambing Golek Aqiqah/Satay/Catering
GEMPAQ GOLEQ!

Para Sarip and Saripah Janjang

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